Kaipara Zebras Support Group

Connective tissue disorders including hypermobility spectrum (HSD) and Ehlers-Danlos Syndromes (EDS). 

 

 

                                                       

Kia Ora,

We have three new lectures with Leslie Russek commencing on May 18th.

Leslie is Professor Emeritus of the Physical Therapy programme based at Clarkson University, Potsdam, New York. She has 25 years experience working with patients with connective tissue disorders such as hypermobility, has done ongoing research into EDS, and lectures to professionals and patients.

The first, at 12 noon May 18th is Posture and Joint Protection.

Followed in subsequent weeks by Cervical Instability 1: Causes and then Cervical Instability 2: Management

Zoom link for HSD/EDS Lectures

Previous lectures can be found here

Contact Wendy kaiparazebs@gmail.com

Noho ora mai

Wendy and Jacquelyn.

The photo above was taken at the Zebra support group on Wednesday 7th October, 2020.

L to R: Kelly McQuinlan (EDSNZ), Jacquelyn Schirmer (Osteopath  Mangawhai Osteopathy),

Wendy Fairs (hEDS & Northland Regional Hub  leader) and Kylie Burling (EDS NZ).

We run regular support groups for patients with HSD and EDS and their families and friends.

Jacquelyn works closely with Dr. Fraser Burling, an Auckland rheumatologist also with a special interest in EDS, and attends international conferences and monthly clinicians’ meetings. She has a role with EDS NZ to advocate on education for NZ practitioners on management and care for our patients with HSD and EDS.

 

Here are links to EDS charities in New Zealand, UK and the USA. All have different information and may suit different needs. 

EDS NEW ZEALAND

EDS UK

EDS USA

 

We’d like to thank Ehlers-Danlos Syndromes New Zealand for their support of our work.

We’re so glad to be working with you to get the word out to help patients and their families.

Here’s to a long, healthy collaborative relationship!