Next meeting: Wednesday 3rd June
Kaipara Zebras Support Group
Connective tissue disorders including hypermobility spectrum (HSD) and Ehlers-Danlos Syndromes (EDS).
This is our inaugural support group for Mangawhai Zebras!
We’ve added a link below to ‘A Letter to My Patients’ by Dr. Alan Pocinki. MD.
This was written in 2010 and Jacquelyn found it recently. She gives it to all her HSD/hEDS patients to help them understand. It helps her diagnose and understand too! Well worth a read.
We’d like to thank Ehlers-Danlos Syndromes New Zealand for their support of our work. We’re so glad to be working with you to get the word out to help patients and their families. Here’s to a long, healthy collaborative relationship! https://www.facebook.com/EDSNewZealand/