Our latest Zebra meeting was on Wed Oct 7th
Kaipara Zebras Support Group
Connective tissue disorders including hypermobility spectrum (HSD) and Ehlers-Danlos Syndromes (EDS).
The photo above was taken at the Zebra support group on Wednesday 7th October, 2020.
L to R: Kelly McQuinlan (EDS New Zealand Charity, Jacquelyn Schirmer (Osteopath Mangawhai Osteopathy), Wendy Fairs (hEDS & Northland Regional Hub leader) and Kylie Burling (EDS NZ).
We run regular support groups for patients with HSD and EDS and their families and friends.
We’ve added a link below to ‘A Letter to My Patients’ by Dr. Alan Pocinki. MD.
This was written in 2010 and Jacquelyn found it recently. She gives it to all her HSD/hEDS patients to help them understand. It helps her diagnose and understand too! Well worth a read.
We’d like to thank Ehlers-Danlos Syndromes New Zealand for their support of our work. We’re so glad to be working with you to get the word out to help patients and their families. Here’s to a long, healthy collaborative relationship! https://www.facebook.com/EDSNewZealand/
