Our next Zebra Support Group is via Zoom and starts on

Wednesday 25th August at 12noon

Kaipara Zebras Support Group

Connective tissue disorders including hypermobility spectrum (HSD) and Ehlers-Danlos Syndromes (EDS). 

 

 

                                                         

Kia ora,

We hope you are all doing very well in these strange times?

On August 25th at 12noon we start a series of weekly Zoom lecture sessions with Dr. Leslie Russek. 

Leslie is the Doctor of  Physical Therapy programme based at Clarkson University, Potsdam, New York. She has 25 years experience working with patients with connective tissue disorders such as hypermobility, has done ongoing research into EDS, and lectures to professionals and patients.

The first session in the series is Basics of HSD/hEDS and Self Care.

Zoom Link

Email us for further information and any queries

kaiparazebs@gmail.com

Wendy and Jacquelyn

Here’s my invitation on video!

CLICK HERE

The photo above was taken at the Zebra support group on Wednesday 7th October, 2020.

L to R: Kelly McQuinlan (EDSNZ), Jacquelyn Schirmer (Osteopath  Mangawhai Osteopathy),

Wendy Fairs (hEDS & Northland Regional Hub  leader) and Kylie Burling (EDS NZ).

We run regular support groups for patients with HSD and EDS and their families and friends.

 

We’ve added a link below to ‘A Letter to My Patients’ by Dr. Alan Pocinki. MD.
This was written in 2010 and Jacquelyn found it recently. She gives it to all her HSD/hEDS patients to help them understand. It helps her diagnose and understand too! Well worth a read.

The letter.  

We’d like to thank Ehlers-Danlos Syndromes New Zealand for their support of our work. We’re so glad to be working with you to get the word out to help patients and their families. Here’s to a long, healthy collaborative relationship! https://www.facebook.com/EDSNewZealand/