Kaipara Zebras Support Group
Connective tissue disorders including hypermobility spectrum (HSD) and Ehlers-Danlos Syndromes (EDS).
We hope you are all doing very well in these strange times?
On August 25th at 12noon we start a series of weekly Zoom lecture sessions with Dr. Leslie Russek.
Leslie is the Doctor of Physical Therapy programme based at Clarkson University, Potsdam, New York. She has 25 years experience working with patients with connective tissue disorders such as hypermobility, has done ongoing research into EDS, and lectures to professionals and patients.
Here is a link to the recorded videos from our sessions.
Any queries? Email Wendy here.
Wendy and Jacquelyn
Here’s my invitation on video!
The photo above was taken at the Zebra support group on Wednesday 7th October, 2020.
L to R: Kelly McQuinlan (EDSNZ), Jacquelyn Schirmer (Osteopath Mangawhai Osteopathy),
Wendy Fairs (hEDS & Northland Regional Hub leader) and Kylie Burling (EDS NZ).
We run regular support groups for patients with HSD and EDS and their families and friends.
Jacquelyn works closely with Dr. Fraser Burling, an Auckland rheumatologist also with a special interest in EDS, and attends international conferences and monthly clinicians’ meetings. She has a role with EDS NZ to advocate on education for NZ practitioners on management and care for our patients with HSD and EDS.
Here are links to EDS charities in New Zealand, UK and the USA. All have different information and may suit different needs.
We’d like to thank Ehlers-Danlos Syndromes New Zealand for their support of our work.
We’re so glad to be working with you to get the word out to help patients and their families.
Here’s to a long, healthy collaborative relationship!