EDSNZ Newly Diagnosed Seminar
The next seminar date is COMING SOON!
This seminar is for people who are newly diagnosed (and their whānau), or those still finding their way through the system.
It may also help identify some useful tools you haven’t come across yet.
We will be holding these seminars every couple of months, and at different times, so if this time doesn’t work for you there will hopefully be another that will suit.
This is a free seminar run by EDS NZ and our Clinical Advisory Panel.
Facilitated by Jacquelyn Schirmer and Kelly McQuinlan (President of EDSNZ).
You are able to forward questions here
Other members of the Clinical Advisory Panel will forward answers and some will be present for the presentation.
If you feel this would be of help to you or whanau
Meeting link here
Slides of the presentation are available on the EDSNZ website
Jacquelyn chairs the EDS NZ Clinical Advisory Panel, has spoken on one of the ECHO practitioner international training sessions for the Ehlers-Danlos Society and attends international conferences and monthly clinicians’ meetings.
She has a role with EDS NZ to advocate on education for NZ practitioners on management and care for our patients with HSD and EDS.
Here are links to EDS charities in New Zealand, UK and the USA. All have different information and may suit different needs.
We’d like to thank Ehlers-Danlos Syndromes New Zealand for their support of our work.
We’re so glad to be working with you to get the word out to help patients and their families.
Here’s to a long, healthy collaborative relationship!