Connective tissue disorders including hypermobility spectrum (HSD) and Ehlers-Danlos Syndromes (EDS).
If you’re reading this it’s likely you have a form of hypermobility disorder, are looking for answers, or know someone that may have it.
Watch this video to get an idea of what it’s all about. Thanks to Coventry University for supporting the hEDStogether.com research.
We understand that Hypermobile Syndrome Disorder (HSD) and Ehlers Danlos Syndrome (EDS) can be a lonely business.
It can seem that someone has a multitude of apparently unrelated symptoms. These vary according to the individual and type of EDS. Making diagnosis difficult.
Many will do the rounds of clinicians and be told, or made to feel the pain and other symptoms, are “in the head.”
Most of us will have had diagnosis or endure such conditions as, fibromyalgia, chronic fatigue, IBS and other gut issues, headaches, migraine, anxiety, lightheadedness on standing (orthostatic intolerance.)
Your skin is most probably stretchy and you bruise easily. Wounds may take longer to heal.
You may feel or have been told that you are clumsy or accident prone. This is due to poor proprioception. A sense or awareness of the body’s ability to sense its location, movements and actions.
In the past you may have been told you are double jointed or super flexible.
You may be intolerant to certain foods, chemicals or sensory stimuli.
Dislocations and subluxations are common. As is pelvic dysfunction.
Symptoms will also vary with the individual and the type of EDS.
Osteopathy is a holistic, gentle practice and a part of HSD/EDS management.
At the clinic we keep abreast of the latest in research and HSD/EDS management.
HEDGE Study – ready about the amazing international collaboration to find the genetics for hEDS.
Since the announcement of the extraordinary “Moonshot” donation in early 2018, which was then followed by a generous matching donation in early 2019, The Ehlers-Danlos Society brought together a highly experienced international group of physicians, geneticists, and technical volunteers to form the Hypermobile EDS Genetic Research Network which has now evolved to become the Hypermobility Biology Network, dedicated to finding the genetic cause, or causes of hEDS.
From the Ehlers-danlos Society Website.
You’ll find Jacquelyn here
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– Wendy and Jacquelyn