Connective tissue disorders including hypermobility spectrum (HSD) and Ehlers-Danlos Syndromes (EDS). 

 

 

If you’re reading this it’s likely you have a form of hypermobility disorder, are looking for answers, or know someone that may have it.

We understand that Hypermobile Syndrome Disorder (HSD) and Ehlers Danlos Syndrome (EDS) can be a lonely business.

It can seem that someone has a multitude of apparently unrelated symptoms. These vary according to the individual and type of EDS. Making diagnosis difficult.
Many will do the rounds of clinicians and be told, or made to feel the pain and other symptoms, are “in the head.”

Most of us will have had diagnosis or endure such conditions as, fibromyalgia, chronic fatigue, IBS and other gut issues, headaches, migraine, anxiety, lightheadedness on standing (orthostatic intolerance.)

Your skin is most probably stretchy and you bruise easily. Wounds may take longer to heal.

You may feel or have been told that you are clumsy or accident prone. This is due to poor proprioception. A sense or awareness of the body’s ability to sense its location, movements and actions.

In the past you may have been told you are double jointed or super flexible.

You may be intolerant to certain foods, chemicals or sensory stimuli.

Dislocations and subluxations are common. As is pelvic dysfunction.

Symptoms will also vary with the individual and the type of EDS.

Osteopathy is a holistic, gentle practice and a part of HSD/EDS management.

At the clinic we keep abreast of the latest in research and HSD/EDS management.

Helpful Links

You’ll find Jacquelyn here https://www.ehlers-danlos.com/healthcare-professionals-directory-new-zealand

Wendy is part of the https://ehlers-danlos.org.nz committee.

For connection and support and to subscribe to our newsletter kaiparazebs@gmail.com

EDSNZ Facebook group https://www.facebook.com/groups/LooselySpeakingNZ

For education and support

https://www.ehlers-danlos.com

https://www.ehlers-danlos.org

https://www.hypermobility.org

https://www.dynainc.org/docs/hypermobility.pdf

– Wendy and Jacquelyn